Welcome to our European SYNGAP1 Registry.
We are building our SYNGAP1 registry with the help of the European SYNGAP1 patient organizations.
We have made a start with the German speaking organizations SYNGAP Elterhilfe and Leon & Friends. Currently we offer participation in the following languages: English, German, Italian, Dutch, French and Spanish.
To register as a patient, please click here.
For more information as a self-help organization or clinician, write to us at: email@example.com
June 28, 2020: